Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version

Piotr Krajewski; Łukasz Matusiak; Marta Szepietowska; Julia Rymaszewska; Gregor Jemec; Joslyn Kirby; Jacek Szepietowski

doi:10.5114/ada.2020.97064

eISSN: 2299-0046
ISSN: 1642-395X

Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii

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abstract:

Original paper

Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version

Piotr K. Krajewski

¹

,

Łukasz Matusiak

¹

,

Marta Szepietowska

²

,

Julia E. Rymaszewska

²

,

Gregor B.E. Jemec

³

,

Joslyn S. Kirby

^{4, 5}

,

Jacek C. Szepietowski

¹

Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wroclaw, Poland
Student Research Group of Experimental Dermatology, Department of Dermatology, Venereology and Allergology, Wroclaw Medical University, Wroclaw, Poland
Department of Dermatology, Zealand University Hospital, Roskilde; Health Sciences Faculty, University of Copenhagen, Denmark
Department of Dermatology, Penn State Health Milton S. Hershey Medical Center, Hershey, PA, USA
European Reference Network for Rare and Complex Diseases of the Skin (ERN-Skin) member

Adv Dermatol Allergol 2021; XXXVIII (6): 967–972

DOI: https://doi.org/10.5114/ada.2020.97064

Online publish date: 2020/07/14

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AMA

Krajewski PK, Matusiak Ł, Szepietowska M, et al. Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version. Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii. 2021;38(6):967-972. doi:10.5114/ada.2020.97064.

APA

Krajewski, P. K., Matusiak, Ł., Szepietowska, M., Rymaszewska, J. E., Jemec, G. B.,  & Kirby, J. S. et al. (2021). Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version. Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii, 38(6), 967-972. https://doi.org/10.5114/ada.2020.97064

Chicago

Krajewski, Piotr K, Łukasz Matusiak, Marta Szepietowska, Julia E Rymaszewska, Gregor B Jemec, Joslyn S Kirby,  and Jacek C Szepietowski. 2021. "Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version". Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii 38 (6): 967-972. doi:10.5114/ada.2020.97064.

Harvard

Krajewski, P., Matusiak, Ł., Szepietowska, M., Rymaszewska, J., Jemec, G., Kirby, J.,  and Szepietowski, J. (2021). Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version. Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii, 38(6), pp.967-972. https://doi.org/10.5114/ada.2020.97064

MLA

Krajewski, Piotr et al. "Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version." Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii, vol. 38, no. 6, 2021, pp. 967-972. doi:10.5114/ada.2020.97064.

Vancouver

Krajewski P, Matusiak Ł, Szepietowska M, Rymaszewska J, Jemec G, Kirby J et al. Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version. Advances in Dermatology and Allergology/Postępy Dermatologii i Alergologii. 2021;38(6):967-972. doi:10.5114/ada.2020.97064.

Introduction
Hidradenitis suppurativa (HS) is a chronic, inflammatory and painful cutaneous disease which often has a negative influence on patients’ quality of life. Dermatology-specific instruments, such as Dermatology Life Quality Index and Skindex, are commonly used to evaluate HS patients’ quality of life. However, due to the lack of specific questions, these scales may not be adequate and may not reflect the real problem.

Aim
To translate and validate the Polish version of a newly created HS-specific questionnaire – Hidradenitis Suppurativa Quality of Life (HiSQOL).

Material and methods
A forward and backward translation was conducted from the original English version of the questionnaire to Polish language ac-cording to international standards. The validation was performed on a group of 30 patients suffering from HS, who completed the questionnaire twice with a 4–5 days’ interval.

Results
The Polish version of HiSQOL questionnaire showed a very good internal consistency (Cronbach  coefficient was 0.96 for total score). Excellent reproducibility with the intraclass correlation coefficient (ICC) of 0.97 was demonstrated.

Conclusions
The Polish version of HiSQOL questionnaire has high internal reliability, validity and reproducibility. It can be used as a tool to assess health-related quality of life in the patients suffering from hidradenitis suppurativa.

keywords:

Hidradenitis Suppurativa Quality of Life (HiSQOL): creation and validation of the Polish language version

Piotr K. Krajewski 1 , Łukasz Matusiak 1 , Marta Szepietowska 2 , Julia E. Rymaszewska 2 , Gregor B.E. Jemec 3 , Joslyn S. Kirby 4, 5 , Jacek C. Szepietowski 1

hidradenitis suppurativa, quality of life, questionnaire

Piotr K. Krajewski

¹

,

Łukasz Matusiak

¹

,

Marta Szepietowska

²

,

Julia E. Rymaszewska

²

,

Gregor B.E. Jemec

³

,

Joslyn S. Kirby

^{4, 5}

,

Jacek C. Szepietowski

¹